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Dystonia


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Subject
Author
Replies

Torticollis
I would like for folks to explain to me their pain they are feeli...

gracie
0

Dystonia
I have had this condition for 2yrs now but have just started with...

bill
0

Dystonia - writers cramp - as a Pool Player
Help from anyone that has had or is having this problem would be ...

Simon
0

Dystonia???
On April 13 my daughter had very bad muscle spasm in her right ar...

Brenda Levasseur
1

Dystonia and Multilple Sclerosis combined
Would love to hear from anyone who suffers from both conditions o...

Natalie
0

New to this Dystonia Disease..
Hi.. I see no one has posted for a while. But just found this s...

Sea
0

oromandibular dystonia
i sufferred a problem in 1989 for which many treatments have been...

R K AGARWAL
0

dystonia
My husband has dystonia, he was on medication and now is taking B...

Flo Buzzi
5

focal dystonia
Does anyone know anything about/have any experience with focal dy...

milkweed
0

dystonia pain management
I am interesting in learning about the type of pain people with d...

julie jones
0

dystonia AND PREGANACY
I am three months pregnant and my dr. is concerned because i have...

danita
0

Cervical Dystonia
I have Cervical Dystonia, a painful neurological movement disorde...

June Sumner
1

Stiff Man
I haven't found to many people to talt with about this so please ...

Teresa Beaver
1

dystonia
i am supose to have dystonia also about 7 yrs. i am in cronic pai...

Sue
0

hemi-dystonia
I suffer from hemi-dystonia that affect my right arm and leg I ha...

roza
3

cervical dystonia
Jennifer, I also have dystonia,cervical dystonia,which sounds lik...

Renda
3

I hate this crappy disease
Hello, I am a 17 year old male from St. Louis Missouri. I have ...

Dustin
0

dystonia i have ahead tremmor and cant write as my hand gets cramp
i would like to talk to another person with same complaint.ige ve...

alan
1

dystonia
Hi i've got dystonia as a result of an adverse reaction to taking...

che
0

Autoimmune - dystonia
My 9 year old daughter is diagnosed five years ago of having an a...

Henry Woo
0

epilepsy and dystonia
I have a friend who is newly diagnosed as having epilepsy and par...

June
0

Dopa Responsive Dystonia
After 6 years of trying to find out what was wrong with me, I wa...

Ellie
0

dystonia in neck
My husband has dystonia in his neck. The dr.has him on 8 pills a ...

Flo
9

Focal Dystonia
I have recently been diagnosed with focal dystonia which has affe...

EPharr
1

hemi dystonia
Jan, I don't know much about hemi yet but seems I may have it. B...

Valarie
0

DYSTONIA SUPPORT MEETING EVERY TUESDAY
IF ANYONE IS INTERESTED IN JOINING THE SUPPORT MEETING FOR DYSTON...

JENNIFER
0

childhood dystonia
I am interested in exchanging views with anyone who has a child w...

Kay
0

Blepharospasm
imformation on oromandibular dystonia.Doctors who treat disorder....

Mary Ann
0

post traumatic dystonia
Hi Dee Dee,my husband sounds like he could have the same type ...

Mary Ann
0

Dystonia
I have a son who is 21 years old and just diagnosed as having Dys...

Jeannie
1

esophagus
When I swallow food sometimes for the last 2 years, it painfully ...

Elle
0

DYSTONIA(HEMI)BACLOFEN PUMP
HI, I AM INTERESTED IN TALKING WITH OTHER PEOPLE WHO HAVE HEMIDY...

JAN
0

dystonia
i have been diagnosed with dystonia and am taking tegratol for th...

vicky
1

HEMIDYSTONIA(BACLOFEN PUMP)
I AM A 43 YEAR OLD FEMALE WITH HEMIDYSTONIA ON MY RIGHT SIDE. AFT...

JAN
0

Is it really dystonia?
I was diagnosed with dystonia 7 years ago, my left foot turned in...

Irene
0

dystonia
i'm a mother of two boys,my oldest son has been diagnosed with dy...

kay
0

Drug Induced Dystonia
I was given Dystonia on purpose by an ENT doctor in Hong Kong. I...

WTM
0

Dystonia
The doctor told me to get onto the web and ask about Dystonia. As...

Janell
1

Dystonia / ITB
My neurologist has suggested an ITB (Intrathecal Baclofen Therapy...

Pat
1

dystonia
I was diagnoses after 38 years and dont know where to turn,,famil...

Frannie
1

dystonia
after 37 years I have been diagnosed with dystonia..any suggestio...

fran
1

DYSTONIA(TORTICOLLIS)
I WAS DIAGNOSED WITH SPASMADIC TORTICOLLIS IN FEBRUARY OF THIS YE...

Jennifer
3

Dystonia (Spasmatic Tort)
Please reply I need someone to talk to about this,I live in Orlan...

Judy Bradley
1

WRITER'S CRAMP
Hi! I've just been diagnosed with focal dystonia. My Dr. told me ...

Heike
4

DYSTONIA MY SON NEED INFO
I THINK MY SON HAS THIS.FACIAL TICS STOMACH IN OUT HEADJERKING.RO...

WANDA-WALKER
0

st
Hi, I know the feeling and it is very hard to deal with .I was ...

james chase
0

dystonia and treatment
How to treat Severe Dystonia with medication regimen? ...

tassana termklung
2

Dystonia
What kind of Dystonia do you have? you can email me at the above....

Flower
4

Dystonia- new book
New book for anyone with a movement disorder available, endorsed ...

beka Serdans
0

Dystonia
Mrs. Claws Yep I also have General Dystonia.My right leg is affec...

Flower
0

GENERAL DYSTONIA
Iam interested to find people with General Dystonia. My Dystonia ...

Flower
6

Writers Cramp
Hi, I been diagnose with Dystonia about 4 months ago. I just ha...

Earl
3

paroxysmal dyskinesias
can someone tell me the difference of paroxysmal dyskinesias vs p...

toby
0

Down Syndrome and Q&A of Tounge
Hello there, just thought I would mention, the toung in some or m...

Robin
1

please help! very importnant
I suffer from a movement disorder. I went to our finest neuro Dr....

Toby
0

SPASMODIC TORTICOLLIS
I HAVE HAD A CONDITION CALLED SPASMODIC TORTICOLLIS FOR 9 YEARS N...

GERI SOKOLOSKI
27

botox injections / anyother treatments
Hi everyone, I have torson dystona. I am currently being treated ...

toby
0

dystonia
I am interested in any nutritional therapy that might be availabl...

Maureen Doyle
2

Focal Dystonia
I have had progressive focal dystonia on the right side of my bac...

Maharba
1

Torsion dystonia
I have torsion dystonia.I am not currently in an attack,but my mu...

toby
0

Dystonia/Writer's Cramp
Dear Friends, Woudl like to chat with anyone who is afflicted wi...

Ian
6

Dystonia/Writer's Cramp
Would like to hear from anyone afflicted with dystonia. I do not ...

Bruce
6

E-mail contact with dystonia sufferers in the UK
I have spasmodic torticollis and would like to hear from other dy...

Sue Down
1

Is this dystonia?
Several years ago I had difficulty writing. Went to a doctor and ...

Hornet
2

Dystonia
Rose I have General Dystonia. I have truble walking, need a cane....

Rose
1

DYSTONIA
I AM 17 YRS OLD HAVE HAD THIS DISEASE SINCE AGE 9 ALSO BEEN TO MA...

BETH
1

PKC dystonia
I have just been diagnosed with PKC dystonia. Anyone out there ha...

Nikki
1

need quick support!! regarding torsion dystonia
Hello! For 3 years I have been a victum of medication enduced dys...

toby3
2

dystonia
I would like to correspond with anyone struggling with dystonia. ...

Bernadine Labuda
3

Dystonia
I was diagnosed in January with dystonia Currently trying to con...

Bernadine
1

dystonia
what are the tests to diagnose all types of secondary dystonia an...

tejbans singh
2

torsion dystonia
Please help me to understand what I have to look forward to.3 yea...

Toby
0

pseudo dystonia please give me advise!
I have medication induced dystoina.I am currently in my 8th week ...

Toby
3

dystonia
Looking for information on treatments for dystonia affecting jaw....

Rosy
12

seizures
Hi everyone, I was DX with dystonia. Now my Dr. after seeing me h...

toby3
1

Dystonia (PLEASE READ)
A 21 year old friend of mine has the diease that is called Dyst...

Mollie
1

herpes and dystonia
can anyone give me info on whether or not herpes can have an effe...

toby3
0

dystonia, generalized
has anyone out there been diagnosed with generalized distonia? i...

mrs. claws
17

can G. herpes cause dystonia? just wondering
I only get 1-2 break outs a year, had the std since early 80s. Ha...

toby3
0

TOURETTES
I WAS DIAGNOSED W/ TOURETTES SYNDROME,A COUPLE YEARS AGO.I WAS AL...

TOMMY W ROBERSON
4

Dystonia
I really need advise regarding dystonia.Mine are getting more sev...

Toby
5

dystonia
I was diagnosed with a dystonia resulting from an injury a few ye...

Barbara
9

secondary dystonia
I need advice! Docters say they never saw my form of dystonia and...

Toby
1

secondary dystonia
I have up to 10 day eposoids of dystonia, where my lower half of ...

toby
5

Dystonia
My son has had three episodes of uncontrolable spasms of the left...

Sue
2

Dystonia
Hi all, i appreciate all the responses that i got on this subject...

Shauna
3

dopa responsive dystonia
I am recently diagnosed. any info? ...

suek
5

compazine
Looking for anyone who developed tremors, dystonia or dyskinesia ...

Sharon
3

dystonia
A very close relative of mine was diagnosed with dystonia about 1...

Lynn
2

Dystonia
Hi, my name is Shauna. I'm looking for information on Dystonia. I...

Shauna
10
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